Lighting the way for children with medical complexity
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It may be difficult and uncomfortable to utilize the people who care about you the most. There are many reasons why you may feel hesitant:
The truth is, most people are generally happy to help a friend or family member in need. When caring for a child with medical complexity, your focus should be on supporting the child the best that you can. Let’s walk through some ways that you can ask for help.
Since asking for help can be intimidating, let’s quickly review the 4 main types of communication:
often looks like not communicating at all for fear of speaking up. This can lead to misunderstandings.
tends to be driven by anger and judgment and can also result in inflexibility. This can create a hostile environment.
might mean you don’t directly communicate your feelings, but you hold on to negative emotions and let those affect your actions. This can cause confusion and resentment.
is confident but also respectful of others’ thoughts and feelings. Assertive communication creates space for honest conversations and promotes healthy connections between individuals.
It’s important to ask in an assertive manner to not leave room for confusion. Be direct and to the point while not being rude. Be ready to be open and honest.
Here are some examples:
“We are really struggling with ________ right now. Can you __________?”
“Could you help me by ____________?”
“On ________(this day and time), we are in need of _________. Are you available?”
Saying yes
“That would be so helpful. Thank you!”
“Thank you for your offer, here are three tangible ways you can help right now.”
Saying no
I appreciate your offer, but I’m not sure that would be beneficial for us at this time.”
“That is a great idea, but this_____ would actually be more helpful right now.”
“I would love to accept your help, but don’t have the bandwidth to coordinate at this time.
Can you please reach out to_______. They are aware of our current needs.”
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
