Care Plan Book

The Pediatric Palliative Care Coalition (PPCC) is pleased to provide this Care Plan Book with the hope that it will make the job of a caregiver a little bit easier. We understand how overwhelming and difficult that task can be. Our goal is that this reference guide, to be used by families, caregivers and medical professionals, will become an invaluable source for you and everyone involved in your journey.

Below you will find the Care Plan Book divided into its chapters. You may download these free of charge. You can also order a hard copy binder or a complete digital version on a flash drive.

Binder / Flash DriveDownload Full Care Plan Book

Care Plan Book Chapters

Green square with check mark used to make a bulleted listIntroduction and Acknowledgment
Green square with check mark used to make a bulleted listImportant Contact Information
Green square with check mark used to make a bulleted listInsurance, Medical, and Travel Expenses
Green square with check mark used to make a bulleted listMedical Supplies/Equipment
Green square with check mark used to make a bulleted listMedical History
Green square with check mark used to make a bulleted listDoctor, Hospital, ER, and other Appointments / Meetings
Green square with check mark used to make a bulleted listTreatments / Therapies
Green square with check mark used to make a bulleted listBaseline Data / About Me
Green square with check mark used to make a bulleted listHome Care Plan
Green square with check mark used to make a bulleted listMedications
Green square with check mark used to make a bulleted listFeeding / Diet
Green square with check mark used to make a bulleted listSchool / Program Information
Green square with check mark used to make a bulleted listMiscellaneous
Green square with check mark used to make a bulleted listEmergency
Green square with check mark used to make a bulleted listLegal
ABOUT USAbout Us OverviewWhat is Pediatric Palliative Care?Board of DirectorsMembershipNewsletterVolunteerDonateJoin Email List
EDUCATIONEducation OverviewWebinar SeriesFirefly ChatCalendar of Events
RESOURCESAPP / Resources OverviewLightning Bug AppPA Resource MapResource LinksTerminology
TOOLKITSToolkit OverviewSibling SupportCreative ExpressionsCare Plan BookCaring ConversationsSibling Grief and BereavementSelf-Advocacy Toolkit
ADVOCACYAdvocacy OverviewLegislative NewsFind My LegislatorPPCC LEARN InitiativePARTNERS
DonateCareer

384 Fox Chapel Road, Pittsburgh, PA 15238 | Contact Betsy Hawley at: betsy@ppcc-pa.org

PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.

The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization.  Donations are tax-deductible according to the IRS’s rules and regulations.  The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.

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