Lighting the way for children with medical complexity
DONATE
A child or adolescent with medical complexity and their families often face challenges where self-advocacy becomes important. Young people may not be able to advocate for themselves if they do not understand their illness or know how to express their wants and needs.
While it can be difficult to explain a diagnosis to a child, it is essential to do so in developmentally and age-appropriate ways in order for the child to process the information and begin to develop coping skills.
This toolkit is designed to help parents, caregivers, children, adolescents and teens on the advocacy journey.
A special thank you to Carolyn Antall, CCLS, who worked with PPCC to develop this Toolkit as her Capstone Project during her time at the University of Pittsburgh.
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
