Challenges of Adolescent Self-Advocacy

• Feeling as if they are unimportant
• Feeling as if they have no choice
• Not wanting to appear stupid or weak
• Being sheltered from information
• Being told too much complex information
• Being told information in overwhelming or confusing manners
• Perceiving others as uncomfortable when concerns are mentioned
• Recognizing that some adolescents and teens wish to be actively involved in decision-making that pertains to them while some may not want to be included

As a parent, I think it is important to always try to speak and treat children as close to their chronological age despite their mental age. It is so frustrating when people “talk down” or use baby talk with older children.

Even if their interests are much younger, always speak to them with respect. And never assume nonverbal means that they are not able to understand or comprehend their surroundings and those around them.”

— Allyson W.,  mother of Christopher

Self-Advocacy Tips for Adolescents

• Know your rights
• Surround yourself with trusted peers
• Ask for help when needed
• Share your opinions and preferences
• Practice what you want to say
• Speak up and ask questions
• Remember that your voice is valued
• Keep a journal
• Understand your body, strengths and needs
• Understand your situation to be able to communicate your needs
• Talk to trusted adults for support
• Remember there are no wrong questions or minor concerns
• Make a list of your strengths as well as areas you may need help
• Be involved in conversations and decisions
• Find a community of people with shared experiences
• Don’t be afraid to admit you don’t understand something

Click HERE to download Self-Advocacy Guide for Adolescents document.

Click HERE to download PPCC's All About Me document to share with your healthcare team.

Click HERE to access the Advocacy Checklist of Skills to determine areas of strength, growth and goals.