Lighting the Way in Pennsylvania.
Pediatric Palliative Care Coalition (PPCC), a PA-based statewide coalition, is a volunteer group of professionals, parents, and community members who provide information and resources for families with children with life-limiting conditions.
PPCC, GIPPCC, CHPCC, Jacob’s Heart Children’s Cancer Support Services, and the CSU Shiley Institute for Palliative Care have collaborated to offer the PPC Webinar Series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence.
Click HERE for a listing of the entire series.
Discounts are available for groups and multiple registrations.
CE are available for nurses and social workers.
Monthly Webinar – 2021 Series
March 16, 2021 – Using POLST/MOLST to Engage in Meaningful Conversations in Pediatric Palliative Care
with Marta Friedman and Christy Torkildson
This webinar will offer an overview of using POLST/MOLST in pediatric care, and is applicable to both seasoned and novice POLST users. The presenters will focus on how a POLST can be used as a tool to speak with parents about goals of care and what different states are doing with POLST, across different settings of care.
12:00 PST | 1:00 MST | 2:00 CST | 3:00 EST
February 25, 2021 at 7pm EST – In the Zoom Room: The Couple Relationship Matters, Too!
Join a virtual discussion about maintaining a healthy marital/partner relationship while you are parenting a child with a life-limiting illness. Presented by Courageous Parents Network
March 3, 2021 at 3pm EST – In the Zoom Room: Grief as a Superpower
A conversation with Maria Kefalas, Author of Harnessing Grief: A Mother’s Quest for Meaning and Miracles. Presented by Courageous Parents Network
The PPCC Firefly Chat is a series of interactive virtual discussions that explore issues facing the pediatric palliative care community in PA and beyond.To listen to the most recent chat, A Day in the Life of a Caregiver, click HERE.
The new PPCC Lightning Bug App gives caregivers a suite of indispensable tools to manage, store and share information. Our app streamlines a Caregiver’s experience by providing the tools and features that they need most.
PPCC has collaborated with the Funeral Service Foundation to provide information to medical professionals, parents, and caregivers about children and the grieving process.
Feb 2021 – Wellness & Mindfulness: Coping Skills for Children & Teens
Jan 2021 – Making Wishes Come True
See below for complete list of all PPCC newsletters.
- COVID-19 Response & Resources – Thanks to all of you for the very important and hard work that you are doing in the midst of this healthcare crisis. We hope that you are healthy and well supported as you confront the challenges in this unprecedented time. We will do our best to send out helpful resources as they become available in hopes of making this time a bit easier. Please let us know if there is anything we can do to help support your family or institution. Betsy Hawley, PPCC Executive Director
- Courageous Parents Network
- Courageous Parents Network Blog – posts for parents and professionals
- Courageous Parents Network Resource: Peeking at the Unimaginable – Considering a Child’s End Of Life
- Courageous Parents Network Resource: Downloadable Emergency Plan
- NEW! Resource: Living with Covid-19, Feb 2021, Issue #62
- Resource: Grieving Alone & Together During the Covid-19 Pandemic
A future where all children diagnosed with life-limiting conditions in Pennsylvania will have access to world-class palliative, hospice and end-of-life care. Our goal is to provide a clearer path for children and their families coping with difficult, life-altering experiences.
“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family.
Pediatric palliative care is provided by a team of doctors, nurses and other specialists who work together with a child’s other doctors as an extra layer of support. It is appropriate at any age and at any stage of an illness and can be provided along with treatment meant to cure.” – Center to Advance Palliative Care (CAPC)