Home Page

Lighting the Way in Pennsylvania.


Pediatric Palliative Care Coalition (PPCC), a PA-based statewide coalition, is a volunteer group of professionals, parents, and community members who provide information and resources for families with children with life-limiting conditions.

 

PPCC Lightning Bug App   

The new Lightning Bug app equips caregivers with a suite of indispensable tools to manage, store and share information. Our app streamlines a caregiver’s experience by providing them with tools and features meant to assist with their responsibilities.


2021 PPC Webinar Series     

PPCC, GIPPCC, CHPCC, Jacob’s Heart Children’s Cancer Support Services, and the CSU Shiley Institute for Palliative Care have collaborated to offer the PPC Webinar Series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence.
Click HERE for a listing of the entire series. Discounts are available for groups and multiple registrations.
CE are available for nurses and social workers.

 

Monthly Webinar – 2021 Series 

May 20, 2021 – Transition Planning for the Fully Dependent  Child  
with Kerri Padgett, Moderator; Janet Duncan, MSN, RN, CPNP; Barbara Swoyer, Parent; Julie Hauer, MD; Alyssa Siegel, MD
Before a medically complex, fully dependent child turns 18 years old, parents need to make a mental shift to address the needs of the child as an adult. To continue making medical decisions for a fully dependent adult child, legal guardianship will need to be addressed. Also, the child’s medical care will likely need to be transitioned to adult providers. Understanding the challenges for parents and pediatric providers will allow for improved outcomes for the patient, family and provider.  12:00 PST  |  1:00 MST  |  2:00 CST  |  3:00 EST  

PPCC Firefly Chat  

Stressed But Not Stressed out: Practical Tools for Managing Stress   
Click HERE to listen to the latest Firefly Chat using the passcode – 5#r7QLpH. 
Click HERE to view presentation materials.
Click HERE to view Mindfulness/Gratitude Practices.
Click HERE to listen to the previous chat, A Day in the Life of a Caregiver. 
The PPCC Firefly Chat is a series of interactive virtual discussions that explore issues facing the pediatric palliative care community in PA and beyond. 

 

Latest News

  • PPCC 

Apr 2021 – Advance Care Planning for Pediatric Patients
Feb 2021 – Wellness & Mindfulness: Coping Skills for Children & Teens
Jan 2021 – Making Wishes Come True
See below for complete list of all PPCC newsletters.

Apr 2021 – Advance Care Planning for Pediatric Patients
Feb 2021 – Wellness & Mindfulness: Coping Skills for Children & Teens
Jan 2021 – Making Wishes Come True
Nov 2020 – Honoring Children’s Grief Awareness Day
Oct 2020 – Finding Your Community: Parenting a Child with a Rare Disease
Sept 2020 – Animal Assisted Therapy in Pediatric Palliative Care

PPCC’s mission is to provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.

A future where all children diagnosed with life-limiting conditions in Pennsylvania will have access to world-class palliative, hospice and end-of-life care. Our goal is to provide a clearer path for children and their families coping with difficult, life-altering experiences.

“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family.

Pediatric palliative care is provided by a team of doctors, nurses and other specialists who work together with a child’s other doctors as an extra layer of support. It is appropriate at any age and at any stage of an illness and can be provided along with treatment meant to cure.” – Center to Advance Palliative Care (CAPC)

Betsy Hawley, Executive Director

To send an email, click HERE.

 

Donate Today
Previous
Next