Lighting the Way in Pennsylvania.

Pediatric Palliative Care Coalition (PPCC), a PA-based statewide coalition, is a volunteer group of professionals, parents, and community members who provide information and resources for families with children with life-limiting conditions.

 

Monthly Webinar

December 10, 2020 – Utilizing  Pediatric Concurrent Care: Strategies from the Interdisciplinary Team with David Sine/Valley Children’s Hospital, Sean Hunt/Valley Children’s Hospital, Mary Tiso/Gilchrist Hospice, Melissa Hunt/Optum.  Section 2302 of the Affordable Care Act (deemed Concurrent Care for Children) allows children to receive curative-focused and life-prolonging therapies in conjunction with hospice care. But there are not clear guidelines on how hospices should implement this provision. This session will dive into some practical tips for using pediatric concurrent care by looking at case studies and sharing clinician experience from providers in the field.

   

November is Children’s Grief Awareness Month
    CGAD 2018 Banner 2 01  

November is Children’s Grief Awareness Month, and November 19th is Children’s Grief Awareness Day. Check out the links below for information, resources and activities to help children as they grieve the loss of a special person(s) in their lives.

PPCC Firefly Chat   

PPCC is pleased to announce a new series of interactive virtual discussions that will explore issues facing the pediatric palliative care community in PA and beyond. The first chat, A Day in the Life of a Caregiver, took place on Friday, October 9. To listen to the recording, click HERE.

PPCC Caregiver Lightning Bug AppPediatric Palliative Care App

The new PPCC Caregiver app gives caregivers a suite of indispensable tools to manage, store and share information. Our app streamlines a Caregiver’s experience by providing the tools and features that they need most.

PPCC and the Funeral Service Foundation    

PPCC has collaborated with the Funeral Service Foundation to provide information to medical professionals, parents, and caregivers about children and the grieving process.

 

Latest News

          Sep 2020 – Animal Assisted Therapy in Pediatric Palliative Care
          Oct 2020 – Finding Your Community: Parenting a Child with a Rare Disease
          Nov 2020 – Honoring Children’s Grief Awareness Day

PPCC’s mission is to provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.

A future where all children diagnosed with life-limiting conditions in Pennsylvania will have access to world-class palliative, hospice and end-of-life care. Our goal is to provide a clearer path for children and their families coping with difficult, life-altering experiences.

“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family.

Pediatric palliative care is provided by a team of doctors, nurses and other specialists who work together with a child’s other doctors as an extra layer of support. It is appropriate at any age and at any stage of an illness and can be provided along with treatment meant to cure.” – Center to Advance Palliative Care (CAPC)

Betsy Hawley, Executive Director

To send an email, click HERE.