Lighting the way for children with medical complexity
At this time of crisis, it is of utmost importance to make full use of all resources available. PPCC is committed to providing you with as much up to date information as possible. The following list includes COVID-19 specific links from organizations across the globe. Some resources are provider specific, some family specific and some overlap. Please let us know of other resources that have proven useful: betsy@ppcc-pa.org.
3-Part Webinar Series – FREE – PPC Virtual Town Hall: Creating Virtual Options for Family Support in the Time of COVID: Tips and Tools for Innovative Programming
(Presented with Social Work Hospice and Palliative Care Network (SWHPN). Free of charge due to generous funding from the Funeral Service Foundation.)
COVID has created the need to explore new and different methods of meeting the needs of our families and patients. In this three part series, practitioners will share their experience in using technology to successfully host memorialization events and virtual support groups.
CLICK HERE – 3 Part Webinar Series
Session 1 – Sept 2: Hosting Virtual Hospital/Hospice Memorialization Events – As organizations grapple with how to move their remembrance activities to meaningful virtual events, our panelists share their innovative ideas and problem solving tips to ensure a successful event.
Session 2 – Sept 9: Setting Up and Managing Virtual Support Groups – Learn from professionals who have already navigated the legal, ethical and practical issues of shifting support groups to virtual/online platforms.
Session 3 – Sept 16: Helping Families Explore Virtual Memorialization Options – From planning a funeral to curating memories online, our panel of funeral and memorialization professions explore options available to families.
Webinar Recording – FREE – Grief and Memorialization during COVID-19. Panel discussion hosted by Pediatric Palliative Care 2020 Webinar Series in collaboration with the Social Work Hospice and Palliative Care Network (SWHPCN). To view this webinar or to share it with your network, click on the link above for the recording. Password for recording access: 3l#+vR75
Webinar Recording – FREE – Trudging through Covid-19: Coping with Provider Grief & Moral Distress: Hosted by Pediatric Palliative Care 2020 Webinar Series and moderated by Sarah Friebert. To view this webinar or to share it with your network, click on the link above for the recording. Password for recording access: 7S#A4k&2
Webinar Recording – FREE – Pediatric Palliative Care COVID-19 Townhall Meeting: Hosted by Pediatric Palliative Care 2020 Webinar Series. To view this webinar or to share it with your network, click on the link for the recording:
CLICK HERE for Resources Recommended by Panelists
NAGC Past Webinars: FREE
FSF (Funeral Service Foundation) and NFDA (National Funeral Directors Association)
NAGC – National Alliance for Grieving Children: COVID-19 specific resources for families
Courageous Parents Network: COVID-19 specific resources for families
Pediatrics Ethics Podcast Series: Pandemic Ethics, Ethics and Communication During a Pandemic, Planning for COVID in Washington State
National Coalition for Hospice and Palliative Care: Up to date comprehensive list of COVID-19 specific resources from the leading hospice and palliative care organizations
COVID-19 Ready Communication Skills: A Playbook of Vital Talk Tips: Adapted for pediatrics, this is a super-concentrated blast of tips focused on COVID-19.
A Field Manual for Palliative Care in Humanitarian Crises: There is increasing recognition that palliative care should play an essential role in relief efforts. The goal of humanitarian aid needs to include management of suffering, regardless of expected outcome.
Prayers for Those Affected with COVID-19: Prayers written or adapted by chaplains from Cincinnati Children’s Hospital Medical Center in response to the COVID-19 crisis.
CSU Shiley Institute for Palliative Care – a wide selection of online palliative care courses are available free of charge through June 30.
Center to Advance Palliative Care: All COVID-19 Response resources and online courses have been made publicly available free of charge.
ELNEC: materials including some ELNEC modules for use in training and supporting staff modules and resources are available at no cost
Hospice and Palliative Nurses Association: POLARIS Module 13: Integrating Self-Care Strategies. free of charge until 5/1/2020
Respecting Choices: COVID-19 tools and resources that are currently free and open to all
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
