PPCC Resources and Suggested Resources

PPCC strives to provide comprehensive, up-to-date information on pediatric palliative care/hospice options, as well as support organizations and self-help groups in Pennsylvania and the country.

PPCC Briefs

PPCC Briefs are short bulletins focusing on a wide range of topics pertaining to pediatric palliative and hospice care.

PPCC and the Funeral Service Foundation

These resources give guidance and direction to those navigating end of life decision-making and legacy creation.

PPCC Care Plan Book

The Care Plan Book is a comprehensive tool to help those caring for children, adolescents and teens with medical complexity.

What is Pediatric Palliative Care?

Click here to see a list of frequently asked questions and answers about pediatric palliative and hospice care.

Pennsylvania Resource Map

Use our interactive map to find PA Children’s Hospitals with Pediatric Palliative Care Support & Hospices that Serve Pediatric Patients.

PPCC Toolkits

PPCC has assembled a number of toolkits to provide information and resources for families, caregivers and medical professionals.

Newsletters

Keep up to date with PPCC resources, events and topical information created for medical professionals and families/caregivers...

PPCC and the Collaborative Filmmaking Project

Each of five participants created a short film that celebrated the legacy of their child and explored their grief journey.

PPC Archived Webinars

PPC archived webinars are available for purchase at a reasonable cost. They are useful for instruction, information, and education.

Additional Resources

National Alliance for Care at Home Pediatric e-Journal

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NHPCO report includes a comprehensive view of pediatric hospice and palliative care across the US.

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Courageous Parents Network Digital Magazine - Finding Support

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Pedipal - a monthly podcast about pediatric palliative care

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Funeral Service Foundation: Youth & Funerals - information about children and the grieving process

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Courageous Parents Network Blog – posts for parents and professionals

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CAPC - Get Palliative Care - Pediatric Palliative Care overview

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384 Fox Chapel Road, Pittsburgh, PA 15238 | Contact Betsy Hawley at: betsy@ppcc-pa.org

PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.

The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization.  Donations are tax-deductible according to the IRS’s rules and regulations.  The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.