PPCC Resources and Suggested Resources

PPCC strives to provide comprehensive, up-to-date information on pediatric palliative care/hospice options, as well as support organizations and self-help groups in Pennsylvania and the country.

PPCC Toolkits

PPCC has assembled a number of toolkits to provide information and resources for families, caregivers and medical professionals.

What is Pediatric Palliative Care? - New PPCC Resource

Click here to see a list of frequently asked questions and answers about pediatric palliative and hospice care.

Newsletters

Keep up to date with PPCC resources, events and topical information created for medical professionals and families/caregivers...

PPCC and the Collaborative Filmmaking Project

Each of five participants created a short film that celebrated the legacy of their child and explored their grief journey.

PPC Archived Webinars

PPC archived webinars are available for purchase at a reasonable cost. They are useful for instruction, information, and education.

When a Child Dies - Planning Acts of Love & Legacy

This free guide for families following the loss of a child was made possible through generous funding from Funeral Service Foundation.

Care Plan Book & Flash Drive

The PPCC Care Plan Book and flash drive are comprehensive tools for families, caregivers and medical professionals.

Lightning Bug App

The PPCC Lightning Bug App gives caregivers a suite of indispensable tools to manage, store and share information.

PA Resource Map

Use our interactive map to find PA Children’s Hospitals with Pediatric Palliative Care Support & Hospices that Serve Pediatric Patients.

Additional Resources

National Alliance for Care at Home Pediatric e-Journal

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NHPCO report includes a comprehensive view of pediatric hospice and palliative care across the US.

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Courageous Parents Network Digital Magazine - Finding Support

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Pedipal - a monthly podcast about pediatric palliative care.

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PPCC presents the Funeral Service Foundation’s information about children and the grieving process.

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Courageous Parents Network Blog – posts for parents and professionals

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NHPCO Pediatric E-Journal, May 2024: Anniversary Issue - Pediatric Advisory Council

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384 Fox Chapel Road, Pittsburgh, PA 15238 | Contact Betsy Hawley at: betsy@ppcc-pa.org

PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.

The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization.  Donations are tax-deductible according to the IRS’s rules and regulations.  The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.