Lighting the way for children with medical complexity
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The LEARN initiative is specific to the pediatric palliative and hospice care community in Pennsylvania with the participation of healthcare providers, medical professionals, therapists, clergy, caregivers and parents.
Legislation Education Advocacy Research Networking
To be a part of the LEARN Initiative, contact PPCC Executive Director, Betsy Hawley.
Next LEARN Meeting: February 2025 (date TBA) at 4:00PM
LEARN Dates for 2025:
More information coming soon!
Current LEARN Areas of Emphasis:
Pennsylvania Environmental Scan - The goal of this scan is to create a centralized place for Pennsylvania caregivers and providers to look for pediatric palliative and hospice care and related services (such as family foundations and resources for families) in the form of a GIS (Geographic Information System) map available online.
Click HERE to participate by taking the survey.
Grief Resources - For a list of PPCC's grief resources and a comprehensive list of Pennsylvania resources, click here.
PA Family Care Act - Allows family members to provide critical care and rehab services to elderly loved ones at home, without risking their jobs and financial security.
PA POLST Act - Senate Bill 631 provides a legal basis for POLST forms to be used by medical professionals across all health care settings for seriously ill patients who voluntarily wish to specify the treatment they desire to receive.
PA POLST Education - Free continuing education course designed for Physicians, Physician Assistants, Nurse Practitioners, Nurses and other healthcare professionals who are involved with end-of-life care. Regular virtual LEARN events serve to advance the mission of PPCC with these activities. PPCC welcomes those interested in pediatric palliative and hospice care in Pennsylvania.
Monday, November 11th, 4:00 PM - 5:00 PM
Meeting focus - Children's Grief Awareness and Caregivers
Krista Ball
Director, Caring Place Program and Community Relations
Lisa Iadicicco
Executive Director, Hope Grows
Tracey Condosta
Intake Care Specialist and Mental Health Counselor, Hope Grows
The LEARN Initiative is a program of the Pediatric Palliative Care Coalition. As a part of this initiative, you will have the opportunity to explore Legislative, Education, Advocacy, Research and Networking opportunities to ensure equal access to pediatric palliative care resources of the highest standard throughout the state of Pennsylvania, so that all children facing serious illness and their families receive the care they deserve.
Meeting focus: Children's Grief Awareness and Caregivers with the Highmark Caring Place and Hope Grows. Click on the View Here button for meeting highlights. To watch the recording, click here.
Meeting Focus: Use of the POLST and Out of Hospital DNRs with pediatric patients and an Environmental Scan aimed at pediatric palliative and hospice care resources in Pennsylvania. Click HERE to view a recording of the meeting. Click on View Here button for highlights from the meeting.
Meeting Focus: Resources in the "Plain" Communities for children with rare genetic disorders and building bridges between culture and medicine; PA Environmental Scan. Click HERE to view a recording of the meeting. Click on the View Here button for highlights from the meeting.
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
