*New* PPCC Briefs

PPCC Briefs are short bulletins, written by professionals from many disciplines, on a wide range of topics pertaining to pediatric palliative and hospice care.

They are designed for parents, caregivers, providers and healthcare professionals working with children, adolescents and teens with medical complexity and/or life-limiting illnesses.

All PPCC briefs are sorted by topic and are downloadable.

PPCC Briefs can be downloaded and added to the
PPCC Care Plan Book as additional reference information.

young boy in bed surrounded by pillows and medical equipment

Communication and Decision Making

  • Advance Care Planning for Pediatric Patients | Download
  • Making Healthcare Decisions and Pediatric Advance Care Planning: “Having the Conversation" | Download
  • When a Child Dies - Funeral Planning | Download
  • Flip The Script- Talking About Grief | Download
  • Communicating with Adolescents: Lessons Learned from Motivational Interviewing | Download
  • Pediatric Palliative Care and the Social Work Role | Download
  • The Role of Certified Child Life Specialists in Difficult Conversations | Download

Creative and Expressive Therapies

  • Animal Assisted Therapy in Pediatric Palliative Care | Download
  • Wellness & Mindfulness: Coping Skills for Children & Teens | Download
  • Creative Expressions | Download
  • Music Therapy and Pediatric Palliative Care | Download
  • Incorporating Play for Children with Medical Complexity | Download
  • Pediatric Palliative Care and the Social Work Role | Download
  • Pediatric Palliative Care, Hospitalizations and Music Therapy | Download
  • When We Lose Our First Best Friend: The Ongoing Impact of Sibling Loss | Download

Education

  • Back to School Post COVID | Download
  • Organizational Tools for Back to School | Download
  • Educating the Child with Medical Complexity | Download

Grief, Loss, Bereavement

  • Honoring Children's Grief Awareness Day | Download
  • Grief and the Holidays | Download
  • Sibling Bereavement Program of UPMC Children's Hospital of Pittsburgh | Download
  • When a Child Dies - Funeral Planning | Download
  • Visualizing Loss, a Collaborative Filmmaking Project | Download
  • Flip The Script- Talking About Grief | Download
  • Continuing Bonds: Supporting Staff in Memory-Making and Legacy Building | Download
  • When We Lose Our First Best Friend: The Ongoing Impact of Sibling Loss | Download
  • Growing Up With Siblings With Medical Complexity ~ Perspectives from Two Brothers | Download

Legacy and Memory Making

  • Making Wishes Come True | Download
  • When a Child Dies - Funeral Planning | Download
  • Visualizing Loss, a Collaborative Filmmaking Project | Download
  • Continuing Bonds: Supporting Staff in Memory-Making and Legacy Building | Download

Legislative Policy

  • How to Work with Your Local Legislator on Advocating for Your Child | Download

Parent and Family Experiences

  • Finding Your Community: Parenting a Child with a Rare Disease | Download
  • Back to School Post COVID | Download
  • The Challenge of Being a Caregiver: The Unique Perspective of a Parent and Provider | Download
  • When a Child Dies - Funeral Planning | Download
  • Finding Joy in Pediatric Palliative Care: Identifying ,Capturing and Experiencing Joy as Caregivers of Children with Medical Complexities | Download
  • Having Hope | Download
  • Staying Organized in the World of Medical Complexities | Download
  • Visualizing Loss, a Collaborative Filmmaking Project | Download
  • Anticipatory Guidance and Resources for Families and Clinicians Caring for a Child with Severe Neurologic Impairment (SNI) | Download
  • A Parent's Perspective on Advocating for Your Child | Download

Pediatric Palliative Care Practices

  • Transitioning to Adult Care | Download
  • Finding Joy in Pediatric PalliativeCare, Part 1 | Download
  • Finding Joy in Pediatric Palliative Care: Identifying ,Capturing and Experiencing Joy as Caregivers of Children with Medical Complexities | Download
  • Anticipatory Guidance and Resources for Families and Clinicians Caring for a Child with Severe Neurologic Impairment (SNI) | Download
  • Navigating Adolescence in Palliative Care: Challenges and Strategies | Download
  • Pediatric Palliative Care and the Social Work Role | Download
  • Pediatric Palliative Care, Hospitalizations and Music Therapy | Download
  • Concurrent Care Does Not Go Far Enough for Seriously Ill Children | Download

Siblings

  • Honoring Children's Grief Awareness Day | Download
  • Wellness & Mindfulness: Coping Skills for Children & Teens | Download
  • Sibling Bereavement Program of UPMC Children's Hospital of Pittsburgh | Download
  • Children and Grief | Download
  • When We Lose Our First Best Friend: The Ongoing Impact of Sibling Loss | Download
  • Growing Up With Siblings With Medical Complexity ~ Perspectives from Two Brothers | Download

Transition to Adulthood

  • Transitioning to Adult Care | Download
  • Navigating Adolescence in Palliative Care: Challenges and Strategies | Download
  • Communicating with Adolescents: Lessons Learned from Motivational Interviewing | Download

Wellness and Coping

  • Finding Your Community: Parenting a Child with a Rare Disease | Download
  • Wellness & Mindfulness: Coping Skills for Children & Teens | Download
  • Enduring the Storm | Download
  • Visualizing Loss, a Collaborative Filmmaking Project | Download

384 Fox Chapel Road, Pittsburgh, PA 15238 | Contact Betsy Hawley at: betsy@ppcc-pa.org

PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.

The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization.  Donations are tax-deductible according to the IRS’s rules and regulations.  The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.