Lighting the way for children with medical complexity
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The PPCC LEARN initiative is specific to the pediatric palliative and hospice care community in Pennsylvania with the participation of healthcare providers, medical professionals, therapists, chaplains, caregivers and parents.
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LANTERN is a PPCC resource matching program created to connect Pennsylvania parents and caregivers of children with complex medical conditions (CMC) and intellectual or developmental disabilities (IDD) to the resources they need.
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This interactive Pennsylvania map features pediatric palliative and hospice care resources and organizations.
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Pennsylvania Pediatric Palliative and Hospice Care Task Force Report (PPHC)
The PPHC Task Force, convened by then Secretary of the Department of Public Welfare Estelle Richman, was a collaboration of more than 190 parents, siblings, family members, caregivers, doctors, nurses, hospice workers, social workers, therapists, administrators, lawyers, educators, and researchers. The PPHC Task Force prepared a report identifying challenges and systemic gaps children and their families encounter when attempting to access palliative and hospice care services in Pennsylvania, while simultaneously offering recommendations to resolve the identified issues. The task force report continues to highlight the major challenges facing PA families today.
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
