Lighting the way for children with medical complexity
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Caring for a child with medical complexity or other serious, life-limiting illnesses is uniquely challenging. This can be even more difficult when the child is also living with intellectual or developmental disabilities. Day to day life includes juggling appointments, treatments, medications, household responsibilities, work and much more to meet the needs of the entire family. This often happens at the expense of the caregivers' well-being. Knowing where to locate resources and finding the time to search can lead to feelings of isolation and stress.
The LANTERN Initiative is designed to support parents and caregivers by educating and connecting families to trusted resources while building a community of support. If you are managing these challenges, or you know someone who is, the LANTERN Initiative can help "Light the Way".
The LANTERN Initiative is undergoing some exciting changes! Stop back soon! Questions? Please contact Krista Burgbacher, Program Coordinator, at krista@ppcc-pa.org.
It is comprehensive care for seriously ill children and their families—from diagnosis to cure or end-of-life. Learn more about improving quality of life and the compassionate care everyone deserves.
As the saying goes, parents know best. This is why PPCC needs your voice! Learn more about joining the Parent Advisory Council and help us advocate for the kids who need it most.
PPCC strives to provide comprehensive, up-to-date information on pediatric palliative care/hospice options, as well as support organizations and self-help groups in Pennsylvania and the country.
PPCC is committed to education that promotes the understanding and practice of children’s palliative and hospice care. Our learning opportunities aim to meet the educational needs of caregivers.
Learn how you can get involved through various volunteer opportunities
LANTERN is a pilot initiative that provides assistance to families of children with CMC and IDD in Pennsylvania in finding resources using a peer support model. Our trained LANTERN volunteers have firsthand experience in the needs of families in these circumstances. They offer reliable and caring support by:
The LANTERN Initiative is undergoing some exciting changes! We will be enrolling new participants soon. Questions? Please contact Krista Burgbacher, Program Coordinator, at krista@ppcc-pa.org.
If you need help finding something specific, want to suggest a resource, or notice missing or incorrect information, please email us at resources@ppcc-pa.org.
If you have questions about the Resource Matching Program, contact:
Krista Burgbacher MS, CCLS
Resource Matching Program Coordinator | krista@ppcc-pa.org
The LANTERN Initiative, part of the Resource Matching Program, is made possible thanks to the generosity of the Edith L. Trees Charitable Trust.
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
