Pediatric Palliative Care Coalition (PPCC) provides information, education and resources for families of children with life-limiting conditions, and for the medical providers and professionals who support them.
If you are a provider, a parent or a caregiver, the resources on this website are curated by and for individuals like you. PPCC’s website holds practical toolkits, educational webinars, extensive external resources, advocacy information, and more — all designed to Light the Way in pediatric palliative and hospice care.
Provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.
Build a future where all children diagnosed with life-limiting conditions in Pennsylvania have access to world-class palliative, hospice and end-of-life care.
“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family…”
– Center to Advance Palliative Care (CAPC)
Be a Champion for Self-Advocacy This toolkit includes information, resources and downloadable guides to help caregivers, children and adolescents with medical complexity communicate on their own behalf regarding preferences and decisions.
I Want to Go Home: the Role of a Palliative Care Transport
All PPC Webinars:
12:00PST/ 1:00MST/ 2:00CST/ 3:00EST
Archived Webinars are available for purchase.
Click HERE to register.
LEARN, a PPCC program, helps families and medical professionals improve palliative care services for children with serious illness throughout Pennsylvania. All pediatric palliative and hospice care stakeholders in Pennsylvania are invited to be a part of this group.
Next meeting: Mon, November 11. Registration is required.
Keep up to date with PPCC resources, events and topical information created for medical professionals and families/caregivers who are working with children with medical complexity.
Click HERE for latest newsletter.
The PPCC Firefly Chat is a series of interactive virtual discussions with parents and professionals that explore issues facing the pediatric and hospice palliative care community. FF Chats are free, but registration is required.
Click HERE for more information and to view the recording.
Please consider a donation to PPCC to help families and care providers of children diagnosed with a potential life threatening illness find hope, healing and light in the darkness.
Read about a family's journey in the PPCC Impact Report.
Click HERE.
Registration Discounts are Available
There will be 10 webinars with topics focused on pediatric palliative and hospice care. CE is available for nurses and social workers. Discounts are available for groups and multiple webinar purchases.
Click HERE for the 2024 calendar.
Each of 5 participants created a short film that celebrated the legacy of their child and explored a range of key topics related to their grief journey and experience navigating palliative care for their child.
Within these pages, get a glimpse of PPCC programs and initiatives, along with the impact PPCC has made by working together with parents, medical professionals, volunteers, and donors.
Each group stands alongside PPCC in the mission to provide resources and support for those caring for children with medical complexity.
This PPCC Toolkit features information, resources and downloadable guides to help caregivers, children and adolescents with medical complexity communicate on their own behalf regarding preferences and decisions for healthcare plans and medical procedures.
PPCC would like to thank our donors, members, and grantors for their generous support:
McElhattan Foundation • Jack Buncher Foundation • Kanarek Family Foundation
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
