Pediatric Palliative Care Coalition (PPCC) provides information, education and resources for families of children with life-limiting conditions, and for the medical providers and professionals who support them.
If you are a provider, a parent or a caregiver, the resources on this website are curated by and for individuals like you. PPCC’s website holds practical toolkits, educational webinars, extensive external resources, advocacy information, and more — all designed to Light the Way in pediatric palliative and hospice care.
Provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.
Build a future where all children diagnosed with life-limiting conditions in Pennsylvania have access to world-class palliative, hospice and end-of-life care.
“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family…”
– Center to Advance Palliative Care (CAPC)
Read about PPCC resources, events and topical information for providers and families/caregivers working with children with medical complexity.
Click HERE for latest newsletter.
Register Today!
The 10-webinar series focuses on pediatric palliative and hospice care. CE is available for nurses and social workers. Discounts are available.
Click HERE for the 2026 calendar.
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Title: Shifting Goals of Care When Prognosis is Uncertain in Pediatric Palliative Care
Date: Thursday, January 22
Presenters: Kari Kendall, Dominic Nardi, Jessica Zavadil
PPCC Briefs are short bulletins focusing on a wide range of topics pertaining to pediatric palliative and hospice care.
All PPCC briefs are sorted by topic and are downloadable.
Click HERE: Bridging Language Gaps: Effective Support for Non-English Speaking Families
PPCC Firefly Chats are always free of charge.
This Pennsylvania program is available to parents/caregivers of children with complex medical conditions (CMC) and intellectual and developmental disabilities (IDD).
Light the Way with a donation to PPCC. Your support helps families and care providers find hope, healing and light in the darkness.
Click HERE to read a family's story.
Learn about PPCC programs, resources and initiatives and how they have impacted children with medical complexity and their families.
PPCC branded merchandise is available!
For every purchase, PPCC receives approximately 30% of the price.
This PPCC Toolkit features information, resources and downloadable guides to help caregivers, children and adolescents with medical complexity communicate on their own behalf regarding preferences and decisions for healthcare plans and medical procedures.
PPCC would like to thank our donors, members, and grantors for their generous support:
McElhattan Foundation • Kanarek Family Foundation
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
