A child or adolescent with medical complexity and their families often face challenges where self-advocacy becomes important. This toolkit is designed to help parents, caregivers, children, adolescents and teens on the advocacy journey.

This PPCC Toolkit has been developed to specifically address the needs and concerns of children and teens who have experienced the death of their sibling with medical complexities. We invite you to explore our resources.

PPCC and Courageous Parents Network have partnered to bring as many resources together as possible to help parents, caregivers, and medical professionals give that special attention to siblings who live and share their lives with a brother or sister with medical complexities…

The Pediatric Palliative Care Coalition (PPCC) is pleased to provide this Care Plan Book with the hope that it will make the job of a caregiver a little bit easier. We understand how overwhelming and difficult that task can be…

This information will help caregivers and families ask certain questions to learn if it is time to start a conversation about hospice or palliative care.   The information has been modified so that families can ask similar questions of medical professionals…

In this toolkit you will find activities in Art, Music and Play. You can use these at home, on trips, or in the hospital. They are created by professionals in the pediatric field and not only are they fun, they also promote movement, self-expression and fine motor skills…