Pediatric Palliative Care Coalition (PPCC), a PA-based statewide coalition, is a volunteer group of professionals, parents, and community members who provide information and resources for families with children with life-limiting conditions.
Mission
PPCC’s mission is to provide resources to families, volunteers, and medical professionals caring for children with life-limiting illnesses.
Vision
A future where all children diagnosed with life-limiting conditions in Pennsylvania will have access to world-class palliative, hospice and end-of-life care.
What is Pediatric Palliative Care?
“Pediatric Palliative care is specialized medical care for children with serious illnesses. It focuses on providing relief from the symptoms, pain, and stress of a serious illness—whatever the diagnosis. The goal is to improve quality of life for both the child and the family.
Pediatric palliative care is provided by a team of doctors, nurses and other specialists who work together with a child’s other doctors as an extra layer of support. It is appropriate at any age and at any stage of an illness and can be provided along with treatment meant to cure.” – Center to Advance Palliative Care (CAPC)
Pediatric Palliative Care Coalition
3 days ago
PPCC Newsletter – January 2021 – Making Wishes Come True … See MoreSee Less
Pediatric Palliative Care Coalition
7 days ago
I used to be my brother’s keeper. Now, I am my Mom’s
courageousparentsnetwork.org
A sibling reviews an article exploring communication between parents and the well-siblings of a medically complex brother or sister.Pediatric Palliative Care Coalition
7 days ago
Please read about this important opportunity from our friends at Courageous Parents Network. … See MoreSee Less
Photovoice Study with Siblings and Parents
courageousparentsnetwork.org
CPN is collaborating with Kim Mooney-Doyle, PhD, RN, CPNP-AC andPediatric Palliative Care Coalition
2 weeks ago
Register now for January 19 webinar featuring Dr. Kim Bower, Dr. Debra Lotstein and Dr. Krishelle Aurele- https://mailchi.mp/4a0456709bc1/… … See MoreSee Less
Pediatric Palliative Care Coalition
2 weeks ago
Pediatric Palliative Care Webinars
ppcwebinars.org
Register Here For the 2021 Webinar Series About the Pediatric Palliative Care 2021 Webinar Series There continues to be significant data hig…PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.