The Pediatric Palliative Care Coalition of Connecticut is a state-based coalition founded by a group of interdisciplinary clinicians and volunteers with a passion for assuring that every child and family in need of palliative care services has access to those resources. Established in 2023, the PPCC-CT has quickly grown through a partnership with the Pediatric Palliative Care Coalition of Pennsylvania (PPCC-PA) and a generous grant from the Kanarek Family Foundation.
Our aim is to advance palliative care services for Connecticut’s children (prenatal to 21 years) and their families through advocacy, access to quality care, expanded resources and education by fostering collaborative partnerships among healthcare professionals, state entities and the community.
PPCC-CT Newsletter - Click HERE
We envision a society where every child (prenatal to 21 years) in Connecticut who is facing a complex, serious illness, or potentially life-limiting diagnosis receives compassionate, family-centered, holistic palliative and hospice care that supports their physical, emotional, and spiritual well-being throughout all phases and transitions in care. The PPCC-CT aims to achieve this by:
The PPCC-CT seeks to advance change through participation in legislative action and collaboration with state agencies.
PPCC-CT offers healthcare professionals, families, and students access to a monthly Webinar Series. National experts share their knowledge, experience, and innovation within the specialty. The education strives to enhance clinician proficiency and raise awareness of pediatric palliative care to further support children with serious illnesses and empower their families.
PPCC-CT also promotes participation in Firefly Chats, a free series of interactive virtual conversations where caregivers and medical professionals discuss their challenges and share resources for managing them.
To read our newsletter, please click here.
Directions: Resources for Your Child’s Care is a care plan book published by the CT Department of Public Health to help parents of a child with special health care needs to organize and manage their care.
CT Care Plan Book – English
CT Care Plan Book – Spanish
CT Care Plan Book - Portuguese
Through our organization partnerships, PPCC-CT provides access to a range of resources. A number of Toolkits have been developed to help caregivers and families navigate the various stages of caring for a child with a life-limiting illness. They include:
Caring Conversations
Creative Expressions: art, music, and play
Sibling Support
The Lightning Bug App, developed by web developers, healthcare professionals, parents and caregivers to help manage day-to-day medical details for children with medical complexity. Learn more about these and a host of other resources are available by clicking the links below.
