Lighting the way for children with medical complexity
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Caring for a child with medical complexity affects the whole family, especially with the intensive care that is often needed. This leaves caregivers with little time or energy to seek out support as they juggle other responsibilities. Finding the right resources can feel impossible and overwhelming. That’s why PPCC is committed to building a supportive community that helps families access what they need, so they can spend more time focusing on what truly matters: being with their family.
The Resource Matching Program (RMP) is designed to support parents and caregivers of children with both complex medical conditions (CMC) and intellectual or developmental disabilities (IDD) by connecting them with reliable, relevant resources. Families can access a variety of existing PPCC resources free of charge, including the PPC Webinar Series, Firefly Chats, PPCC Toolkits and Resource Map.
An additional layer of direct support is available for Pennsylvania families through a pilot initiative called LANTERN. Check out the information below.
It is comprehensive care for seriously ill children and their families—from diagnosis to cure or end-of-life. Learn more about improving quality of life and the compassionate care everyone deserves.
As the saying goes, parents know best. This is why PPCC needs your voice! Learn more about joining the Parent Advisory Council and help us advocate for the kids who need it most.
PPCC strives to provide comprehensive, up-to-date information on pediatric palliative care/hospice options, as well as support organizations and self-help groups in Pennsylvania and the country.
PPCC is committed to education that promotes the understanding and practice of children’s palliative and hospice care. Our learning opportunities aim to meet the educational needs of caregivers.
LANTERN is a pilot initiative that provides resources to families of children with both complex medical conditions (CMC) and intellectual and developmental disabilities (IDD) in Pennsylvania. LANTERN aims to educate families on resources and opportunities that are available to them while building a growing network of partners.
For those already enrolled, log in to check out specially curated resources and highlights. We are still enrolling new participants. Contact Krista Burgbacher, Program Coordinator, at krista@ppcc-pa.org if you are interested in participating.
Are we missing something?
Recommend a resource!Please contact: Krista Burgbacher MS, CCLS
Resource Matching Program Coordinator | krista@ppcc-pa.org
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
