2020 Webinar Series

A team from Children’s Hospice and Palliative Care Coalition (CHPCC), Pennsylvania’s Pediatric Palliative Care Coalition (PPCC), Greater Illinois Pediatric Palliative Care Coalition (GIPPCC) Jacob’s Heart Children’s Cancer Support Services, Stanford Medical School and the CSU Shiley Institute for Palliative Care have collaborated to offer the PPC Webinar Series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence in providing care to children.

2020 Webinar Series Flyer

2020 Webinar Series Information and Registration 

September 2, 6, 9, 2020 – 3-Part Webinar Series – FREE
PPC Virtual Town Hall:  Creating Virtual Options for Family Support in the Time of COVID: Tips and Tools for Innovative Programming

Session 1 – Wed, September 2:   Hosting Virtual Hospital/Hospice Memorialization Events:  Resources – Hosting Virtual Hospital Events
Session 2 – Wed, September 9:   Setting Up and Managing Virtual Support Groups
Session 3 – Wed, September 16:  Helping Families Explore Virtual Memorialization Options     

September 22, 2020 – Explaining Pain: Pain Education and Mind-Body Tools for Pediatric Chronic Pain  with Rachel Zoffness, PhD. Dr. Zoffness will cover basic pain neuroscience education, how to “explain pain” to youth and parents, and how to incoroporate user-friendly metaphors when treating pediatric pain. This talk also offers an introduction to Cognitive Behavioral Therapy (CBT) for pediatric chronic pain and illness, outlining how to explain and implement a biopsychosocial approach to treatment, techniques used in CBT, and patient psychoeducation.

 

October 22, 2020 – Through the Eyes of a Grieving Child with Viki Jay, NAGC – National Alliance for Grieving Children   

November 17, 2020 – Partnering with Funeral Professionals to Support Families Following the Death of a Child with Kristin James, Greater Illinois Pediatric Palliative Care Coalition; Betsy Hawley, Pediatric Palliative Care Coalition – Pennsylvania; and Kelly Manion, Funeral Service Foundation   

 

  • Jan 2020 – Decoding Decision-Making with Families – Janet Duncan and Courageous Parents Network  – webinar recording coming soon
  • Feb 2020 – Can Compassion Fatigue? – with Lori Butterworth and Kelly Johnson – webinar recording coming soon
  • Mar 2020 – Spirituality in Children & Families Facing Serious Illness Betty Farrell & Gay Walker, End-of-Life Nursing Consortium – webinar recording coming soon
  • Apr 21, 2020 – Pediatric Palliative Care COVID-19 Townhall Meeting: Hosted by Pediatric Palliative Care 2020 Webinar Series. For those who were unable to attend this  live webinar or for anyone who would like to share it with their network, click on the link above for the recording.  Password for recording access: 7t@ZWJZ.  Recommended Resources by Panelists
  • May 6, 2020 – Trudging through Covid-19: Coping with Provider Grief & Moral Distress: Hosted by Pediatric Palliative Care 2020 Webinar Series and moderated by Sarah Friebert. For those who were unable to attend this live webinar or for anyone who would like to share it with their network, click on the link above for the recording.  Password for recording access: 7S#A4k&2
  • June 16, 2020 – Ethical Questions in Pediatric Palliative Care with Sabrina Derrington, Ann & Robert H Lurie Children’s Hospital – webinar recording coming soon
  • June 30, 2020PPC Virtual Town Hall: Grief and  Memorialization During COVID-19 – panel discussion hosted  in collaboration with the Social Work Hospice and Palliative Care Network (SWHPCN). To view this webinar recording or to share it with your network, click on the link above for the recording. Password for recording access: 3l#+vR75  Recommended Resources by Panelists
  • July 21, 2020 – Beyond Fairytale Endings: Using Storybooks and Other Therapeutic Tools to Explain the Death of a Child with Lori Weiner, National Cancer Institute and Meaghann Shaw Weaver, Omaha Children’s Hospital – webinar recording coming soon
  • August 20, 2020 – Pediatric Concurrent Care with Lisa Lindley, University of Tennessee – webinar recording coming soon

2019 Webinar Series

  • Jan 2019  Managing Pediatric Seizures at the End of Life – with Dr. Melissa Hunt
  • Feb 2019  Don’t You Forget About Me: Caring for Siblings – with Yelena Zatulovsky, Dana Richmond,
  • Mar 2019  Building Resilience in Children and Caregivers Facing Serious Pediatric Illness- with Dr. Abby R. Rosenberg
  • Apr 2019  Creative Conversations: Advanced Care Planning in Pediatrics – with Deborah A. Lafond, Kathy Perko
  • May 2019  Providing Spiritual Care with Pediatrics – with Rev. Travis C. Overbeck
  • Jun 2019  Ensuring Psychosocial Wellness in School and the Community for the Seriously Ill Child with Dr. Kathy Davis
  • Jul 2019  Care of Adolescents and Young Adults with Life-Threatening Illness – with Dr. Jennifer Mack
  • Sep 2019  Pain Management for Children with Serious Illness in the Context of the Opioid Epidemic – with Dr. Stefan J. Friedrichsdorf
  • Oct 2019  An Expense Worth Expressing: The Role of Expressive Arts in Pediatric Palliative Care – with Dr. Debra Lotstein
  • Nov 2019  Compatible with Life: Rethinking Care of Children with Trisomy 18 – with Nicole C. Hahnlen

2018 Webinar Series

  • Jan 2018 – Addressing the Spiritual Needs of Children with Dr. Elisha Waldman
  • Feb 2018 – Decision Making in Pediatric Palliative Care with Dr. Scott Maurer
  • Mar 2018 – Kids Need Care, Too! Developing Collaborations, Competencies and Confidence with Jody Chrastek, Diane Knust
  • Apr 2018 – Perinatal Palliative Care with Dr. David Munson
  • May 2018 – Concurrent Care: Pediatrics and Complex Care Plans with Shayna Stiles.
  • Jun 2018 – Approach to Neurologic Symptom Management in Children at the End of Life with Dr. Audrey Foster-Barber
  • Sep 2018 – Transitioning Adolescents into Adult Care with Parag Shah, MD and Rebecca Boudos
  • Nov 2018 – Getting a Better Handle on Parents’ Bereavement with Blyth Lord, EdM & Nancy Frumer Styron, JD, psyD.
  • Dec 2018 – Deep in the Weeds: Medical Marijuana and Pediatric Palliative Care with Dr. Elissa MilleMay