A team from Children’s Hospice and Palliative Care Coalition (CHPCC), Pennsylvania’s Pediatric Palliative Care Coalition (PPCC), Greater Illinois Pediatric Palliative Care Coalition (GIPPCC) Jacob’s Heart Children’s Cancer Support Services, Stanford Medical School and the CSU Shiley Institute for Palliative Care have collaborated to offer the PPC Webinar Series to raise the visibility of pediatric palliative care and to build clinicians’ competencies and confidence in providing care to children.

2020 Webinar Series Flyer

2020 Webinar Series Information and Registration

February 18, 2020 – Can Compassion Fatigue? – with Lori Butterworth, Jacob’s Heart Children’s Cancer Support Services and Kelly Johnson, Lucille Packard Children’s Hospital

With the high burnout rate in the field of pediatric palliative care, this session will investigate what the literature reveals about burnout and how each of us can build the personal and professional resilience we need to sustain ourselves in such an emotionally and physically demanding field. Using emerging research from nurses who volunteer at a camp for children with cancer, this session will guide us to discover ways to alleviate moral distress. We will examine whether it’s our compassion that fatigues when we are on the brink of burnout, leaving us to ponder the question, “If everyone is burning out, who will care for the children?”

March 12, 2020 – Spirituality in Children & Families Facing Serious Illness – with Betty Farrell & Gay Walker, End-of-Life Nursing Consortium

April 21, 2020 – Together in the Sandbox: Palliative Care and Complex Care Partnerships in the Medical Neighborhood – with Sarah Friebert, Akron Children’s Hospital

May 21, 2020 – Guiding Families to Mindfulness Supports Decision Making for Adults and Children – with David Steinhorn, Children’s National Medical Center and Jana Din, Tao Center for Healing 

June 16, 2020 – Ethical Questions in Pediatric Palliative Care – with Sabrina Derrington, Ann & Robert H Lurie Children’s Hospital 

July 21, 2020 – Beyond Fairytale Endings: Using Storybooks and Other Therapeutic Tools to Explain the Death of a Child – with Lori Weiner, National Cancer Institute and Meaghann Shaw Weaver, Omaha Children’s Hospital 

August 20, 2020 – Pediatric Concurrent Care – with Lisa Lindley, University of Tennessee

September 22, 2020 – Explaining Pain: Pain Education and Mind-Body Tools for Pediatric Chronic Pain – with Rachel Zoffness, American Association of Pain Psychology

October 22, 2020 – Through the Eyes of a Grieving Child – with Viki Jay, NAGC – National Alliance for Grieving Children

November 17, 2020 – Partnering with Funeral Professionals to Support Families Following the Death of a Child – with Kristin James, Greater Illinois Pediatric Palliative Care Coalition and Kelly Manion, Funeral Service Foundation

• Jan 23, 2020 Decoding Decision-Making with Families – with Janet Duncan and Courageous Parents Network  – webinar recording coming soon

2019 Webinar Series

• Jan 2019  Managing Pediatric Seizures at the End of Life – with Dr. Melissa Hunt
• Feb 2019  Don’t You Forget About Me: Caring for Siblings – with Yelena Zatulovsky, Dana Richmond, 
• Mar 2019  Building Resilience in Children and Caregivers Facing Serious Pediatric Illness– with Dr. Abby R. Rosenberg
• Apr 2019  Creative Conversations: Advanced Care Planning in Pediatrics – with Deborah A. Lafond, Kathy Perko
• May 2019  Providing Spiritual Care with Pediatrics – with Rev. Travis C. Overbeck
• Jun 2019  Ensuring Psychosocial Wellness in School and the Community for the Seriously Ill Child with Dr. Kathy Davis
• Jul 2019  Care of Adolescents and Young Adults with Life-Threatening Illness – with Dr. Jennifer Mack
• Sep 2019  Pain Management for Children with Serious Illness in the Context of the Opioid Epidemic – with Dr. Stefan J. Friedrichsdorf
• Oct 2019  An Expense Worth Expressing: The Role of Expressive Arts in Pediatric Palliative Care – with Dr. Debra Lotstein
• Nov 2019  Compatible with Life: Rethinking Care of Children with Trisomy 18 – with Nicole C. Hahnlen

2018 Webinar Series

• Jan 2018 – Addressing the Spiritual Needs of Children with Dr. Elisha Waldman
• Feb 2018 – Decision Making in Pediatric Palliative Care with Dr. Scott Maurer
  
• Mar 2018 – Kids Need Care, Too! Developing Collaborations, Competencies and Confidence with Jody Chrastek, Diane Knust
  
• Apr 2018 – Perinatal Palliative Care with Dr. David Munson
  
• May 2018 – Concurrent Care: Pediatrics and Complex Care Plans with Shayna Stiles.
  
• Jun 2018 – Approach to Neurologic Symptom Management in Children at the End of Life with Dr. Audrey Foster-Barber
  
• Sep 2018 – Transitioning Adolescents into Adult Care with Parag Shah, MD and Rebecca Boudos
  
• Nov 2018 – Getting a Better Handle on Parents’ Bereavement with Blyth Lord, EdM & Nancy Frumer Styron, JD, psyD.
• Dec 2018 – Deep in the Weeds: Medical Marijuana and Pediatric Palliative Care with Dr. Elissa Miller