COVID-19 Events & Resources
At this time of crisis, it is of utmost importance to make full use of all resources available. PPCC is committed to providing you with as much up to date information as possible. The following list includes COVID-19 specific links from organizations across the globe. Some resources are provider specific, some family specific and some overlap. Please let us know of other resources that have proven useful: betsy@ppcc-pa.org.
Events & Webinars
Webinar – May 12: NAGC Webinar: Unique Needs of Families Caring for Seriously Ill Children (COVID Response Series)
Webinar – May 6: FREE – Trudging through Covid-19: Coping with Provider Grief & Moral Distress: Hosted by Pediatric Palliative Care 2020 Webinar Series and moderated by Sarah Friebert. For those who were unable to attend this live webinar or for anyone who would like to share it with their network, click on the link above for the recording. Password for recording access: 7S#A4k&2
Webinar – May 4: NAGC Webinar: Keeping Your Glass Half Full (COVID Response Series)
Webinar – April 30: NAGC Webinar: Defining Your Family Grief Values – Finding True North in a Chaotic World (COVID Response Series)
Webinar – April 21: Pediatric Palliative Care COVID-19 Townhall Meeting: Hosted by Pediatric Palliative Care 2020 Webinar Series. For those who were unable to attend this live webinar or for anyone who would like to share it with their network, click on the link for the recording:
Resources:
FSF (Funeral Service Foundation) and NFDA (National Funeral Directors Association)
- Grieving Alone and Together Booklet
- FSF and NFDA Team Up To Offer Free Grief Resource 5-2020
- Click to order multiple copies of the Booklet; Click to order a single copy of the Booklet
American Academy of Pediatrics – Critical Updates on COVID-19
- Caring for Children with Complex Medical Conditions During COVID-19
- COVID-19: Information for Families of Children and Youth with Special Health Care Needs
NAGC – National Alliance for Grieving Children: COVID-19 specific resources for families
Courageous Parents Network: COVID-19 specific resources for families
Children’s Mercy BioEthics Center:
- Pediatrics Ethics Podcast Series: Pandemic Ethics, Ethics and Communication During a Pandemic, Planning for COVID in Washington State
National Coalition for Hospice and Palliative Care: Up to date comprehensive list of COVID-19 specific resources from the leading hospice and palliative care organizations
COVID-19 Ready Communication Skills: A Playbook of Vital Talk Tips: Adapted for pediatrics, this is a super-concentrated blast of tips focused on COVID-19.
A Field Manual for Palliative Care in Humanitarian Crises: There is increasing recognition that palliative care should play an essential role in relief efforts. The goal of humanitarian aid needs to include management of suffering, regardless of expected outcome.
Prayers for Those Affected with COVID-19: Prayers written or adapted by chaplains from Cincinnati Children’s Hospital Medical Center in response to the COVID-19 crisis.
Path to Resilience with COVID-19: Four scientifically-backed techniques to instill calm, control and hope.
The following organizations are offering free educational resources during this time of crisis:
CSU Shiley Institute for Palliative Care – a wide selection of online palliative care courses are available free of charge through June 30.
Center to Advance Palliative Care: All COVID-19 Response resources and online courses have been made publicly available free of charge.
ELNEC: materials including some ELNEC modules for use in training and supporting staff modules and resources are available at no cost
Hospice and Palliative Nurses Association: POLARIS Module 13: Integrating Self-Care Strategies. free of charge until 5/1/2020
Finding the Right Words About COVID-19
Respecting Choices: COVID-19 tools and resources that are currently free and open to all
Videos to view and share:
- Irish Hospice Foundation: Grief in Exceptional Times
- Courageous Parents Network: Staying calm and strong in the shadow of COVID
- A children’s story about social distancing: Time to Come In, Bea
