Lighting the way for children with medical complexity
In order to provide support to siblings of children with medical complexities, we invite you to explore this collection of additional resources, organizations, and articles that highlight materials that were created to provide direction, support, and meaning especially for siblings.
>> Return to Sibling Toolkit
A recording of CPN’s In the Zoom Room on what siblings want, featuring four bereaved siblings reflecting on their experiences. Learn More.
The Sibling Support Project provides web-based resources and education for siblings of all ages.
The Sibling Support Project has published books, articles and papers about, for, and largely by, siblings of all ages. Learn More.
Find the answers to questions like; What are Sib shops, Are Sibshops a form of therapy? and What is the optimal number for a Sibshop? Learn More.
SibTeen is Facebook group where teenage sibs of people with disabilities can connect with others who get it. Learn More.
Guided exploration may help you better understand a particular topic and how you want to address it in your own family’s life. Learn More.
Connecting with other brothers and sisters in person can be a wonderful experience but it is not always practical. Learn More.
Website for children, teens and adults living with a child with medical complexities
Letters and stories from children who have a sibling with medical complexities
GO TO SITELetters and stories from teens who have a sibling with medical complexities
GO TO SITEwebsite offering tools to support siblings of a child with medical complexities
It can be difficult to know the right words to say. We asked some of the siblings we support for their top tips.
GO TO SITELots of things can change when a brother or sister is seriously ill. Parents often have less time to focus on healthy children
GO TO SITEHealthy brothers and sisters will often benefit from time with a grownup who they know is there just for them.
GO TO SITESibling support refers to support given to brothers and sisters of seriously ill children.
School can be a welcome break from a pressured home environment, but it may not always be easy.
GO TO SITEThe Blair Connection website gives siblings of a child with medical complexities a place to connect with others and find support.
GO TO SITEHand to Hold offers support and resources for siblings and families who have experienced the premature birth, birth of a baby with medical complexities or loss of an infant.
GO TO SITEProvides support and resources for siblings and families of a child with medical complexities and developmental disabilities.
GO TO SITEIt can be very difficult to know how to support your children when you are struggling with your own grief. A sibling’s death will change a child’s life forever. It can be overwhelming to know how to help them in the days, months, and years that follow.
GO TO SITESuperSibs’ focus is supporting siblings of children with cancer. SuperSibs’s focus is supporting siblings of children with cancer. The website features resources and materials for siblings of different age groups, parents, grandparents, friends and neighbors, healthcare providers, teachers, and religious and spiritual leaders.
Expected feelings and behaviors for siblings of a child with medical complexities.
WebMD
Discussion with siblings about living with a child with medical complexities
NPR
Feelings for siblings of a child with medical complexities and tips for caregivers
Children’s Hospital of Philadelphia
Expected feelings for siblings of a child with medical complexities and coping strategies Cancer.Net
Expected feelings for siblings of a child with medical complexities and coping strategies
healthychildren.org
Suggestions to support parents and caregivers in caring for the siblings of a child with medical complexities
childrensmn.org
What to expect and communication suggestions for siblings of a child with medical complexities
patientworthy.com
Expected reactions and emotions of siblings of a child with medical complexities
St. Jude Children’s Research Hospital
Expected feelings for siblings of a child with medical complexities and coping strategies
Blog: from Deseret News
Communication with siblings of a child with medical complexities
New York Times
Discussion on how camps can help siblings of a child with medical complexities manage their situation
Amercian Camp Association
PPCC is not a health care provider and does not give medical advice or treatment. PPCC does not endorse or recommend any listed facilities, service providers, or support groups herein. PPCC offers the list and information as a resource only. PPCC does not pre-evaluate, or consider the Medicare/Medicaid status of the providers.
The Pediatric Palliative Care Coalition is a registered 501(c) (3) not-for-profit organization. Donations are tax-deductible according to the IRS’s rules and regulations. The official registration and financial information for PPCC may be obtained from the Pennsylvania Department of State by calling toll-free within Pennsylvania 1-800-732-0999.
